Wednesday, June 9, 2010

Humility, luck of the draw, response to adversity, courage, etc etc etc

We've run across, and on occasion shared meals and sleeping qtrs with,
a number of other cross-country (or long dx, anyway) riders so far
along the route, but none quite like this guy. This is Allen, who we
met a week or so ago, on the day we came into the Elk Garden Church
(which I wanna say was near Rosedale VA?) early in the day, after a
very short ride, and he was getting ready to head out. Allen has
Friedrich's ataxia (not sure that's the exact right name), a no-cure,
degenerative nerve condition which has already cost him the use of his
legs, and will eventually render him totally unable to control his
body--until it kills him by destroying his ability to breathe. (That
was a hard sentence to write, and probably hard to read, but just
imagine living under that cloud.) Despite this mega-bleak future, he
was an amazingly engaging and upbeat guy -- laughing and joking and
talking with us about his condition and his ride, a perfect lesson in
"you-think-YOU-got-troubles?" He's on a fund- and awareness-raising
ride (I bought one of his T-shirts), on a hand-cranked cycle, from St
Louis to DC -- see www.fromheretothere2010.com. I tried his cycle --
very hard work, altho as he said, unlike us severely-abled types, when
he stops to take a break, his bike doesn't fall over. He had all of
the big VA hills still to climb; I hope he makes it; I bet he will.
Godspeed, Allen.

2 comments:

  1. A few thoughts from cousinville...you rock (I am practicing granddaughter talk); I'm getting off eharmony - keep posting those nice guy thighs pictures; don't forget to up brother Robb's per mile commitment for those tricky downhills. Ride on......
    Marcia

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  2. It's hard to believe that after almost 3 weeks of steady cycling and 1,000 miles, you're still in Kentucky! Who knew that the east extended so far west?
    Your travelogue, profile, and commentary are wonderful. Your posts, which we check often, make us laugh and they make us cry.
    It is clear that you are focused, as well you should be, on all things cycling related, so I'm guessing that the daily news is pretty peripheral to your life right now. Most of it will be much as it was when you started - you know, the oil spill; the economy; war; trouble in the Middle East; etc. etc. But 1 item came briefly across the airwaves and newspapers that might be of passing interest: Al and Tipper Gore, after 40 years of marriage, calling it quits. Who would have guessed?
    Looks like weather out your way could be better in the next few days. Stay safe.

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